The Division of Intramural Research (DIR) of NICHD finalized its policies for data sharing in 2015, in accordance with NIH research guidelines and data access procedures. Each investigator is required to have a data sharing plan (DSP). These plans are divided into the following three categories:
- Human Genomic Data Sharing: Data collected using human subjects, human tissues, or noncommercial and/or individually identifiable cell lines; de-identified and/or individually identifiable data will be shared, unless an exception is formally approved by the DIR. All DSPs are reviewed by the NICHD Institutional Review Board (IRB). Compliance by secondary parties accessing this data may be required.
- Non-Human Genomic Data Sharing: This category refers to large-scale sequence data and includes sequence reads, transcriptomic data, epigenomic data, gene expression data, and structural genomic data, for animals or specified model organisms from which genomic data is derived.
- Non-Human, Non-Genomic Generic Data Sharing: Data in this category includes all data supporting any derived published papers, to be made available no later than the date of initial publication.
Contact Our Labs
The links provided for each of our researchers, under NICHD Labs, will take individuals wishing to access data to the appropriate source and link(s) for the applicable studies. Repositories are provided, indicating whether data access is unrestricted or controlled. Data must also conform to relevant standards and terminology. Each investigator has a point of contact for his or her research group, who can address inquiries.