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Patient Handouts and Support Groups

General Links

• Extended Visitor Pass Form
• NIH Patient Education Information
• The Hormone Foundation Fact Sheets for Patients (Bilingual)
• Magic Foundation

Cancer Survivors

• Cancer Survivor Long Term Follow-Up Guidelines

CAH and Adrenal Insufficiency

• CARES Foundation (CAH)
• Sick day rules for children with CAH
• Sick day rules for adults with adrenal insufficiency
• Sick day rules for children in Spanish
• Sick day rules for adults in Spanish
• Adrenal Insufficiency Action Plan by Dr Larson et al, Walter Reed
• • AIAP_FINAL _VERSION_AUG_2021.pdf
  • Development and assessment of a low-health-literacy, pictographic adrenal insufficiency action plan.pdf
  • How to use electronic AIAP.docx

Cushing Syndrome

• Cushing Syndrome Research Foundation

Diabetes

• American Diabetes Association

Turner Syndrome

• NICHD Turner Syndrome Unit Website
• Turner Syndrome Society